I've been putting this off because I wanted to have a plan, but sometimes, the only way to start something is to jump right in.
So here it goes:
For the last 5 years, I have been getting sicker and sicker. It started out with migraines (I never used to have headaches), I developed food sensitivites, then my yearly sinus infection became an all-winter sinus infection, and somehow I kept getting cold after cold, all year long. Finally last year in April, on month two of the latest sinus infection, I collapsed while walking with by fiancee. Even though I rested on the couch for days, I just never had enough energy to get up. I won't go into details now, but at the peak of the summer, I was seeing 11 specialists trying to figure out what was wrong. None of the tests showed anything wrong with me - no allergies, no diseases, all of the tests said I was normal.
Eventually my naturopath put me on an adrenal hormone as a stop-gap, which gave me enough energy to move around, and even though my endocrinologist couldn't find anything really wrong in my bloodwork, he prescribed a continuing dose so I could function. But we still didn't have a clue about what was making me so tired. I knew something was wrong - I had not been a sick child - why was I constantly sick? What was going on? Would I ever be able to get back to work?
Finally On January 1 of this year, I got an answer. I have a poorly-understood condition called Environmental Illness (EI), and now that I've had a whole 1.5 months to learn about it, I realize I want to share my experience with other people so other people don't end up in my situation. I've learned that over-exposure to the many chemicals in my environment - my hair products, the xerox machine down the hall, my carpets, dryer sheets, laundry detergent, perfumes...and a host of other products - has caused a reaction in my body that is not fully reversible.
By cleaning my environment of the products that were making me sick, I can -and am - getting healthy again. On the other hand, I'll never be able to spend much time in an environment with these chemicals again without having a serious reaction to the chemicals in the air. In short, I've learned that my life will never be the same again. The amazing thing is, I'm learning that compared to many other people with this condition, I'm one of the lucky ones because I've found a diagnosis before EI lead to major damage to my organs, or even more damage to my immune system.
That's the short version. I plan to add more to this blog as I learn more about this condition. I'm still in such a learning mode right now... I know there are other people out there with this condition, and eventually I'll find someone who can share their experience with me.
Monday, February 14, 2005
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